One Year in the NDIS – a retrospective

Jonathan SharHello, my name is Jonathan Shar. I have cerebral palsy with secondary dystonia and I have just completed my first year as a participant on the National Disability Insurance Scheme (NDIS), and to be honest it hasn’t changed much in my day-to-day life.

Before the NDIS, the supports I received from the NSW government were not sufficient but at least I knew what to expect as my service provider made all the arrangements.

If anything, the NDIS has made things initially more complicated. Getting used to the myplace portal (where you access your plan, make service bookings and track how your funding is being spent) was my biggest challenge. The fact that you need to make a service booking for every time you use your funding was a big change in mindset for me. I have learnt from past mistakes of forgetting to put bookings in and built up a routine of logging in once a week to make all bookings for the following week.

Building up a good relationship with your Local Area Coordinator is key to getting a good plan. The provider in my area has been superb. If you are getting started as a NDIS participant, I would avoid Support Coordination, (where someone is employed to help you connect with services providers, mainstream services, the community and informal supports) because in my case they did nothing. My first plan was self-managed but for my second plan I changed to having Plan Management (where someone is paid to handle the business and financial work of getting your supports happening). Being self-managed requires a lot of behind the scenes administration work that may not suit everyone.

Communication with service providers also important. It is a good practice to keep a PDF of your plan and send relevant parts of it to the organisations you work with. In my case some providers were better than others. For example, one organisation I have used automatically made bookings on my behalf on their end while another just sent me invoices and waited a few months to tell me to make service bookings.

The first year of the NDIS for me was all about getting my bearings with the new system. Figuring out how different services are funded and which areas of funding to use was confusing to get your head around at times. It’s not just 1 big bundle of money you get to deal with. It’s divided into separate budgets to cover ‘Core’ (covering daily activities, social and community participation, consumables and NDIA managed transport); ‘Capacity Building’ (covering therapies and other assistance to help develop participants’ abilities); and ‘Capital’ (covering assistive technology and home modifications). Sometimes it’s a bit confusing working out which budget to use. For example, one of my main therapies, Conductive Education, is funded under Capacity Building and not Core like I first thought.

On the whole, I think the NDIS has some teething problems such as the portal and payments but fundamentally these issues will iron them self out between now and full roll out. People have to remember this is the biggest social reform since Medicare and there are bound to be problems but for me the NDIS has been a step in the right direction . In the future, my big goal is to move out of my family home into independent living so I’m going to ask for more personal support and training in life skills in my next plan.


Be Part of Saying Good-Bye to the ‘R’ Word

If you’re anything like me, it really grates me when people don’t think about the language that they use. Especially when it is in a negative way or used to put people down.

So, when I heard about a campaign that challenges people to think about using the word “retarded”, I was especially interested since we all know how much it is part of popular culture.

It’s a word that modern society uses freely and openly. No one flinches when they speak it or write it and very few people question the use of it as everyday language.

However, the ‘R’ word is incredibly offensive and derogatory not just to those people with an intellectual and physical disability but also to their friends, families and support teams. The word makes people feel excluded, different and not accepted by the community.

Did you know that the ‘R’ Word is used on Social Media every 5 seconds?

On Twitter alone, the stats are staggering with at least:

125,000 +           Uses of the R Word per week

17,858 +             Uses per day

744                      per hour

12                        per minute.

Here at Physical Disability Australia, we were particularly interested in this campaign as we value dignity inherent in all of us and we’re especially keen in efforts to improve the lives of our members.

By changing the language that society uses to describe people, we are highlighting out we are the same rather than different. We see this campaign as promoting inclusion for people with disabilities as well as to ensure that society becomes more diverse while providing equal opportunities for all of us.

The ‘R’ Word Campaign is simple.  This campaign encourages people to consider the words they use and the impact they have on others.  All in all, it’s a simple campaign to help raise awareness and educate the public on the very real impact of what the ‘R’ Word means to many, many people.

And we’re looking to you to help us take the campaign onto the world stage and to make society think about the language that they use.

Please visit the website, watch the videos, share the campaign on social media and most of all – please stop using the ‘R’ Word and call out those who do.

Feel free to share the material on the website on your own social media profiles and to spread the word that using the ‘R’ word is no longer acceptable.


Today is World Social Justice Day

Jonathan SharPhysical Disability Australia has the core value of social justice, it drives everything we do as an organisation.

February 20 is World Social Justice Day, a United Nations sanctioned event that aims to promote “Social justice as an underlying principle for peaceful and prosperous coexistence within and among nations. We uphold the principles of social justice when we promote gender equality or the rights of indigenous peoples and migrants. We advance social justice when we remove barriers that people face because of gender, age, race, ethnicity, religion, culture or disability.”

Social justice is about advocating to alleviate disadvantage through campaigning for social change by striving for equality.  It is important to celebrate Social Justice because it drives us  to do better by the disadvantaged and marginalised. Advocacy is a key role for PDA.

PDA integrates social justice into all of our activities by promoting equality for all people living with a physical disability in Australia, we seek to help create a fair and equitable society that is accessible for ALL. By being a voice for our community on issues affecting our lives we champion Social Justice, take our recent Queensland Rail campaign as an example of how we practice social justice.

My name is Jonathan Shar, I am the PDA Director for NSW and I study a Bachelor of Arts majoring in Social Justice. I chose this major because it will enable me to advocate on behalf of people with disabilities and to be able to strive for equality of people regardless of their ability, this semester I will be studying 2 courses. One on Law, Human Rights and Global Governance the other on Human Rights, Policy and the Law. These courses will enhance my ability to represent your concerns on the state and national level.

Locally in NSW, an example of Social Justice is the Stand by Me campaign to protect funding for disability advocacy. Advocacy is a key part of Social Justice, giving a voice to the voiceless and the disadvantaged is key to preserve the rights of people with disabilities. Their online petition on has already attracted over 30,800 signatures. You can sign the petition here.

Physical Disability Australia wishes you a Happy World Social Justice Day!


President’s Welcome

Liz Reid

My name is Liz Reid and I am the President of Physical Disability Australia and Director (NT).

It is my pleasure to welcome you to PDA’s blog’s page and it is something that I hope will grow over the coming year to be a place where we can provide information and engage with our membership.

It is somewhere that members can contribute to and to discover the submission requirements, please click here.

2018 is going to be a big year for PDA. We hope to engage with the government, NDIA and other stakeholders to promote the unique needs of people with physical disability.

PDA will continue to campaign and lobby for our members so that they may live a good life with dignity, choice and control. It will also lobby for a fair and equitable NDIS.

PDA is also committed to promoting the National Disability Strategy and encouraging both government and business to implement it.

By appointing Associate Directors, this year will see a better engagement with members and social media will be part of that. I encourage you to become members of PDA (sign-up for free here) as well as follow us on Twitter and Facebook.

2018 will also see a focus on governance and strengthening PDA as an organisation. It is important that PDA has quality internal controls in order to be a stronger organisation and can be more accountable to the needs of its members.

Finally, I wish you all the best for the coming year ahead and look forward to work on your behalf to see better outcome for people with physical disability.


Do you want to see your work in lights?

Welcome to the blog page of Physical Disability Australia.

Here at PDA, we’re keen to engage with our members and provide a forum for their voices to be heard. This includes allowing you to submit work for consideration and these may include a blog post, video clip or podcast.

While PDA would love to receive submissions, before you do send anything to us, please have a read of the PDA Editorial Guidelines that explains what we’re looking for and what we will accept.

If you have any questions about the process, please feel free to contact PDA’s Manager at

We look forward to hearing from you!