My Week in Sydney

Written by Melanie Hawkes – PDA’s WA Director

I went to Sydney for my brother’s wedding in November 2025. My airfares and hotel were booked back in June, so I could relax and wait for my trip to happen. Or so I thought. 

This was my first trip on a plane with my boyfriend James, and his first time to Sydney (my fourth trip there, I think). I was relaxed, but James was getting stressed leading up to the trip. He’s autistic, and I was putting him in a situation he’d never been in before. It was bound to overwhelm him at some stage. My support worker Gen also came with us. 

We wrote lists of what to pack, and triple checked them before zipping our suitcases shut. My mum dropped us all off at the airport (six minutes is how quick you have to be to not be charged. When you have 3 people, 3 suitcases, and a wheelchair to offload, there should be some leniency. But Mum was quick enough to get out for free!). 

James wanted to be there super early. We ignored the prior messages from Qantas about online check-in and made our way to the special assistance desk. We handed over our luggage, got tags on my wheelchair and answered 100 questions about its size and weight. 

By the time we got through security (and my pat down), ate lunch, and went to the toilet, it was time to be at the gate. I’d told Qantas when I booked in June that I’d need the Eagle Lift to get to my seat. They had it, but brought it out at the last minute. As I drove underneath it to be hoisted up out of my chair, they had trouble making it wide enough to fit easily. It should have been a red flag.

They brought me into the plane and then realised the sides weren’t able to come in again. They were stuck in a wide position. This would not do to get me onto my seat as it needed to be adjustable to go between the rows of seats in economy. I was hanging around in the doorway of the plane while they figured out a plan B. The staff were getting quite stressed and embarrassed by this malfunction of the lift. The plane had already been delayed an hour, so what was another few minutes? I was happy to hang around in the doorway. 

I asked if they had an aisle chair nearby. Up and down on the lift still worked, so I suggested they go find one. They did, so they lowered me on to that, removed the Eagle Lift from the plane, and wheeled me down to my seat. James and another crew member managed to lift me on to my seat. Just a bit of drama to start our holiday. I hoped it wasn’t an omen for what was to come. 

We had an enjoyable flight, and my wheelchair made it in one piece. It was after 11pm when we lined up for a taxi. We didn’t have to wait too long before a maxi taxi came. 22 minutes later we were at our hotel, but it cost $80! I couldn’t believe how expensive it was. My interstate voucher has a value of $25, so I had to pay $55. I was paying cash but the driver didn’t offer a discount. We took a while to get the correct change, which he didn’t appreciate, and he took off in a huff. I found out later that the NSW Government pays drivers $27.50 every time they take a local wheelchair user (a lift fee). But not when you’re from interstate, so I had to bear that cost. That’s why it was expensive for a short trip. Why isn’t it the same across Australia? If only Ubers took wheelchairs in specialised vehicles…

We checked into the Adge Hotel in Surry Hills. But when we got to our room, there was no hoist. I’d booked Independent Living Specialists to deliver a full hoist with pivot frame that day. We made a call to reception but they didn’t know anything about it. James was able to lift me from my chair into bed, but we’d need it in the morning to get me up safely. We set our alarm for 8am and fell asleep. 

We called ILS just after 8am but they didn’t open until 9am. We finally had a call from John at the warehouse around 10am, He was furious that the delivery man tasked with dropping off my hoist the day before didn’t do it, nor told anyone that he hadn’t. So John was going to come himself, but not until after midday. This was the first day of our holiday. I didn’t want to spend most of it in bed. Plus I was hungry. The meal on the plane hadn’t filled me up.

So I decided to skip a shower, and get dressed in bed. Gen and James were able to top and tail me, and lifted me back into my chair. It sure beat waiting for the hoist to arrive. 

John called us before 12:30pm to say he was there. We had already left and were on our way to Circular Quay to show James the iconic sites. I forgot how hilly Sydney was, and how steep ramps can be. It was lucky that James rides on the back of my chair as he was able to hold my shoulders while going down slopes. My balance isn’t great, so it was nice having James support me. The alternative is to tilt my chair back every time I went down steep ramps. That would take too long each time and I’d be late everywhere. Even with my footplates elevated, I still scraped the bottom on some ramps.

After lunch at Circular Quay, we did an accessible tour of the Sydney Opera House. It was nice to see behind the scenes, and the roof tiles up close. Our guide was knowledgeable and courteous of our needs. 

When we arrived back at the hotel that night, the hoist was indeed there, and fit under the bed with the blocks I’d brought. But the carpet was very plush, and took a lot of strength to push it in our room. Why do accessible hotel rooms have carpet? It would make life easier if they had a hard floor covering instead, with the option of a rug if people required it. 

The next morning we got up and had a shower. It was easier to leave the hoist in one position and bring the chairs to me. The hoist plus my weight made it tricky to move with me in it over the thick carpet. Of course we had to move it from the bed, but once clear, we left it in place. I was lowered onto my shower chair (I brought my own) and had a nice shower (although there was a large leak coming from the hose. While rinsing my hair it was washing my face at the same time!). 

When it came time to transfer from the shower chair to my wheelchair, we hoisted up to the maximum height (which wasn’t very high). After changing chairs beneath me, I was lowered. We detached the sling, and pressed the up button. Nothing happened. It wouldn’t go up to make space for me to reverse. It would only go down. 

I managed to back away, and plugged the hoist in, thinking it had a flat battery. Ten minutes later we tried again, but no change. At least I’d had a shower and got dressed and was in my chair before it broke down. I called John from the day before and told him about the issue. He said he’d send someone and report back later today. We left it at reception and headed for Taronga Zoo.

I’d forgotten how hilly the zoo was. In some places there were gentle slopes, but steep slopes in other locations. I’m glad I’m in a power wheelchair as manual chair users would have trouble. The zoo does have access maps, so is possible to plan your trip. 

One of their lifts was out of service, so to get back up from one area, we had to go back all the way we’d come. Everyone else could go straight up the escalator instead. The views from some parts of the zoo are spectacular, and we saw plenty of animals. 

John called me back to say they sent someone to check my hoist, but is in working order. They couldn’t find a fault with it, apparently. Very strange. 

The bus drivers we had that day were kind enough to let us on without paying. I informed the drivers that we have electric ramps on our buses in Perth. They sounded annoyed that they had to fold the ramp out manually. I was impressed there was a seatbelt for wheelchair passengers to use, and I probably should have. Those roads are so bumpy and have I mentioned how hilly Sydney is? My wheelchair slid a few times. 

The next day we had the same issue with the hoist not going up again. Instead of calling them, I asked Gen to lower it all the way to the bottom. Sure enough, it then went up again. I’ve never had this issue with a hoist before. We made sure we never went to the maximum height after that, and didn’t have another problem with it. 

The wedding was held at the National Art School in Darlinghurst. It was beautiful. A real party. But no accessible toilet. After 5 glasses of champagne, it was almost midnight, so I decided to call it a night. I went back to the hotel to use our accessible toilet. It was a shame that I couldn’t stay on, and party until the sun came up like my brother did with half the guests. But I still had fun.

On our last full day there, we decided to go to Manly on the ferry in the afternoon. But first, lunch. Some locals raved about a ramen shop nearby that we were keen to try. We ran out with 30 minutes before their kitchen closed, only to find they had a big step out the front. We were so looking forward to ramen, but had to settle for burgers down the road as they had access. It wasn’t fair.

The Manly ferry was nice, once I got over the shock of the gangway. It was steep. Going up is easier for me than down, so I got on without much trouble. I was hoping we’d come back to a different pier; one where it was less steep. My heart sank when we weren’t. 

“Wait until everyone else is off, please,” the ferry worker told me. I was preoccupied with the steepness of the slope that I failed to notice how close the fence was to the end of the gangway. I wasn’t going to be able to turn as soon as I was down and I would probably hit the fence.

As soon as everyone else was off, they moved the gangway so that it was no longer on a 90° angle with the ferry. It looked very dangerous being on a more acute angle. They reassured me that it was safe enough for me to go down. I tilted my chair back, James jumped on the back of my chair so he could hold on to my shoulders and keep my balance, and we went down very carefully with my heart in my chest. It felt like a miracle that I made it off the ferry in one piece, and didn’t crash into that fence.

I was so stressed about getting off that ferry safely that I forgot to get a video or a photo. How they can justify that it meets disability standards is beyond my belief. I recently travelled to Rottnest by ferry, and also had issues with the steep ramp getting off.

As much as I enjoyed my time away, I looked forward to coming home. But it wasn’t before more dramas with the Eagle Lift breaking down at Sydney airport before boarding our flight. Luckily, they had a spare, and it was brought out to assist me all the way to my seat on the plane. 

Sydney is a very pretty city, but for anyone in a wheelchair, it’s a tough place to navigate. There’s no place like home, and I was very grateful to be back in my own bed, with equipment that worked, cheaper taxis, and in an easier city to navigate on six wheels. ​

A Message from PDA’s CEO

On behalf of the PDA staff and Board, I’d like to say Merry Christmas or Happy Holidays (both are good) to all those who have supported PDA throughout 2025, those who have worked alongside us towards our cause for better human rights, improved participation and less discrimination for those of us living with a physical disability, our families and friends.

We may not shout the work that we do from the roof tops or seek recognition or acknowledgement for our efforts but that does not lessen the importance or significance of what we do.

To our members, thank you for believing in us.

We look to 2026 knowing that we still have work to do.

We will do this work with humility and understand the privilege bestowed on us in our roles.

Merry Christmas to one and to all.

Jeremy Muir

Join us to celebrate Physical Disability Awareness Day on Sunday 1st February 2026

On Sunday February 1st 2026, Physical Disability Australia (PDA) will be hosting the fourth Physical Disability Awareness Day.

Established by PDA in 2023 after seeing a gap in the awareness calendar for highlighting physical disabilities, this very special day brings attention to people living with physical disability, their contributions and the many conditions that fall under the physical disability umbrella.

The day also provides a wonderful opportunity for people to come together and be united in their support for Australia’s physical disability community.

The ever popular online DisabiliTEA event will once be held, this time with a fun disability themed Bingo session (with some fantastic prizes) and some amazing guest speakers who will share their stories.

The Bingo host and caller will be Robert Wise, Physical Disability Awareness Day Committee member and PDA Board representative.

NSW/VIC/ACT/TAS 2pm
SA: 1.30pm
QLD: 1pm
NT: 12.30pm
WA: 11am

Feel free to pour yourself a cold drink or make yourself a cuppa as you enjoy a fun line up of guests and fun disability themed bingo games.

To register for the online DisabiliTEA event, please go to https://us02web.zoom.us/meeting/register/q3wGsKsUSga_rmddVY_lmw

GROUP EVENT REGISTRATIONS – Registered DisabiliTEA individuals running group events with 4 or more registered attendees who actually show up, will go into the draw to win a $100 Prezzee gift card to be divided/distributed by winning registered host at the discretion of those attending the winning group event.

We look forward to having you join us to celebrate Physical Disability Awareness Day 2026.

Together let’s grow and strengthen Physical Disability Awareness Day by making some noise, being seen, being recognised, being considered and being celebrated.
For news and updates on what’s happening near you and how you can be involved, please email promotion@pda.org.au.

If you would like to run your own Physical Disability Awareness Day event or would like to be involved in the organising committee for next year, please email Natasha Nobay (Communications and Engagement Manager, Physical Disability Australia) at promotion@pda.org.au or call 1800 732 674.

IMAGE: The Physical Disability Awareness Day logo is made up of many diamond/square shaped leaves made up of the colours of the rainbow. Over the top of this sits the words “Physical Disability Awareness Day” in white text. The inclusion of many colours within the logo represent the many different physical disabilities, encapsulated in the purple associated with disability representation. The leaves (squares) pointing inwards within the overall image signify the unity and support within the physical disability community and wider public, and the pointing out of leaves symbolise the need to raise awareness and to increase support, inclusion and acceptance moving forwards.

#pdad2026 #PhysicalDisabilityAwarenessDay #PhysicalDisabilityAwarenessDay2026 #creativepossibilities

Feeling overwhelmed and in need of support and understanding?

The festive season can be an incredibly difficult time for many of us and it is important to know that help and understanding is available for anyone in need of an understanding ear to listen, a shoulder to lean on or a heart to care.

If you’re feeling overwhelmed and in need of support, please reach out to family, friends or a support organisation.

Keep in touch with your loved ones and be aware of those around you.

Take care of yourself and others.

You are not alone!

Lifeline on 13 11 14
Beyond Blue on 1300 22 46 36
headspace on 1800 650 890

PDA’s Sarah McInnes presented at the Human Rights Day Symposium

On Wednesday 10th December 2025, PDA’s accomplished Policy and Project Officer, Sarah McInnes, was a guest panelist at the Human Rights Day Symposium hosted by B-Hart.

Leading voices from government, academia and lived-experience perspectives addressed human rights in shaping disability service provision.

Big ideas, bold conversations, and plans for real action were shared by an incredible lineup of speakers including the Hon Nat Cook (SA Minister for Human Services), Pouya Farbod (Founder and CEO, B-HART), Skye Kakoschke-Moore (CEO – Children and Young People with Disability Australia), Natalie Wade (Associate Commissioner, NDIS Quality and Safeguards Commission), Katrina Webb-Denis PLY OAM (Paralympian and Founder, Newday Leadership) and Michelle Ryan (Artistic Director, Restless Dance Theatre).

Congratulations to everyone involved in this incredible event. Should a recording become available, we will let you know.

Would a Human Rights Act remove the need for International Day of People with Disability?

Written by Jeremy Muir – CEO, Physical Disability Australia


Yesterday was International Day of People with Disability (IDPwD).

As a person that lives with a disability, I didn’t celebrate the day or attend any IDPwD events.

Leading up to yesterday and now the day after, I have been trying to reflect on why I wasn’t able to embrace the occasion?

I acquired my disability in 1983, 2 years after the first IDPwD was declared, and 44 years ago. In 1992, Australia brought into law the Disability Discrimination Act (DDA), with a set of subsequent DDA standards to follow. Australia ratified the Conventions of the Rights of People with Disability (CRPD) in 2008 and in 2010 the first National Disability Strategy was endorsed by all incumbent governments. In 2013 the NDIS commenced, and was touted as one of the greatest social reforms for people with disabilities.

On the surface, from a legislative and policy perspective, all the of the afore mentioned give the impression that people with disabilities in Australia should be fully accepted in Australian society. It’s also not lost on me that Australia, as a Nation, positions disability in a far better place than many other countries. However, we should be experiencing full participation in all aspects of life – including education, employment, healthcare, recreation, housing and financial stability.

Now, I could list a range of statistics here that indicate that this is not the case, and in my current role I get to see these numbers on a regular basis. But this is more of a personal post, so here is a link: https://www.aihw.gov.au/reports/disability/people-with-disability-in-australia/contents/about

So why have I been struggling to embrace the IDPwD?

I acknowledge that there are many people with disabilities in Australia who will have many varied experiences when talking about their own lives. Some will do so with positivity and others respond with a more negative tone, leaving others somewhere in between. Me, I’m ambivalent.

I experience discrimination on a regular basis. I witness vitriol thrown at my colleagues and friends because of their disability. I read the lateral violence that comes our way, and I see the impact it has on us.

We are in the trenches fighting for the rights of people with disability, or re-fighting battles we thought we had won 40, 30, 20, 10 years ago, and it appears that we have reached a plateau at the most.

I want to believe in us, in Australian society, in the people, in government. I want to get to the point where we no longer have to fight for our inalienable rights. I want a Human Rights Act. I want to stop and take a breath and say, “job done.”

Maybe then I will be able to fully embrace the IDPwD or, better yet, there will no longer be a need for this day!?

International Day of People with Disability – December 3rd 2025

Fostering disability inclusive societies for advancing social progress.

Today is International Day of People with Disability.

A special and important day to celebrate our community, and promote awareness, understanding and acceptance of people with disability.

Together let’s remind the world, that true social progress only happens when every individual, regardless of ability, has the opportunity to participate fully and equally in society.

Help shape the future of inclusion: The Assistive Technology Survey 2025

Intopia, Australia’s leading digital accessibility consultancy, has launched the Assistive Technology Survey 2025, a study designed to capture how Australians and New Zealanders use, access and experience assistive technology.

Coinciding with International Day of People With Disability (#IDPWD), the launch of this Survey highlights the importance of listening to lived experiences to drive real change.

Now in its third year, the Assistive Technology Survey is the first and only survey of its kind, building a robust evidence base to help inform policy, product design and accessibility innovation across Australia and New Zealand.

The survey seeks input from anyone living in Australia or New Zealand, aged 18 or over, who uses assistive technology or adaptive strategies to make their devices easier to use. This could include people with disability, older people, allied health professionals, educators and support workers.

Insights will help identify barriers, gaps, and opportunities for improvement, ensuring assistive technology is inclusive, effective and accessible for everyone.

Survey details:

Open: 3 December 2025

Close: 6 February 2025

Duration: Approximately 15 to 25 minutes to complete

Participation is open to anyone in Australia who uses or supports assistive technology. All responses are anonymous and confidential.

To take part in the Assistive Technology Survey 2025, please go to:

For more information, please contact:

Jacinta Gregory
Inclusive Research Consultant, Intopia
ATSurvey@intopia.digital
intopia.digital