Why, in 2025, is equitable healthcare not accessible by every Australian and why are the failings and inadequacies stemming from this failure to provide not being put right?

Have you experienced poor access to healthcare services or treatment due to your physical disability?

Have you felt let down by, discriminated against or just not heard by medical professionals?

Why does the expectation of fair and accessible healthcare not always meet reality?

On Tuesday 5th August at 6pm AEST, PDA will be addressing these (and other) issues in a webinar that examines Australia’s healthcare system and where it is failing those living with physical disability.

Our guest speakers will contribute to the conversation, sharing their respective knowledge, experiences and expertise and addressing your concerns and personal perspectives.

Dr Dinesh Palipana OAM is a frontline medical professional, working as a principal medical officer in the emergency department at the Gold Coast University Hospital. His understanding of the medical system, its resources, capabilities, successes, challenges and shortfalls will provide a thorough overview of what needs to be addressed to improve services to people with disability.

The inimitable Carol Taylor is also on our speaking panel. With a background in law, and as the world’s first quadriplegic fashion designer of adaptive fashion and inclusive design, she is already positioned as a strong disability advocate working towards positive change for Australia’s disability community. However, recent issues around her own health have amplified her passion for making things right in a healthcare system that needs to address accessibility and patient-centred care for people with disability.

Another of our speakers that we are proud to announce is Dr Yi Yang, a Research Fellow with the University of Melbourne. Well respected and known for her research on health inequalities faced by people with disability, she is interested in quantifying inequalities in the National Disability Insurance Scheme (NDIS) and assessing the potential impact of policy changes in reducing these inequalities. As an epidemiologist, Yi has also led studies examining cancer inequalities among people with disability.

We are so incredibly grateful to have these accomplished individuals as panelists at this upcoming webinar and thank them for agreeing to be involved.

Please keep an eye on our socials for exciting announcements about additional panel members.

PDA’s CEO, Jeremy Muir, believes that fair and accessible healthcare is an important conversation that needs to be had, raising issues that need to be addressed. “How would you feel if you arrived to have an X-ray or CT scan only to find you couldn’t access the premises or the scanning technology? Unfortunately, this is the experience for many people living with physical disabilities. With this inequity potentially leading to their missing out on necessary preventative or diagnostic screening, they may be put at an increased risk of time dependent diagnosis and preventative medical care. Why, in 2025, is equitable healthcare not accessible by every Australian and why are the failings and inadequacies stemming from this failure to provide not being put right?”

This webinar will reignite the conversation and provide important insights for people with disability, the healthcare sector, service providers and the very systems that need to hear what’s truly happening and what needs to be sorted now.

To register for this webinar, go to:

https://us02web.zoom.us/webinar/register/7617509040703/WN_6zzLprNATDeWu1GD8ARb5A

On registering, we also invite you to share any questions that you would like to ask our speakers. You can choose to remain anonymous in asking these questions.

The opportunity to ask questions will also be made available during the webinar. However, please be mindful that these questions will be answered dependent on time constraints.

We look forward to you joining us for this incredibly important discussion and your helping to explore what is and isn’t working in the provision of healthcare for people living with disability in our country.

“There are many challenges for people with disability accessing healthcare. The data remains confronting. This is an important topic for us to move forward as a community.”~ Dr Dinesh Palipana OAM

Join us on Tuesday 5th August at 6pm AEST, to hear Dinesh and other expert speakers talk about “fair and equitable healthcare”.

We look forward to you joining us for this incredibly important discussion to explore what is and isn’t working in the provision of healthcare for people living with disability in our country.

To register go to:

https://us02web.zoom.us/webinar/register/WN_6zzLprNATDeWu1GD8ARb5A

On registering, we also invite you to share any questions that you would like to ask our speakers. You can choose to remain anonymous in asking these questions.

The opportunity to ask questions will also be made available during the webinar. However, please be mindful that these questions will be answered dependent on time constraints.

Sharing builds community and provides support

We strongly believe that knowledge is power and that the sharing of experiences, advice and understanding is paramount to empowerment and belonging.

The team here at PDA is very proud of the community of members, supporters and followers who we travel with on our journey to amplify the voices of Australians living with physical disability and make a difference in their lives.

Our blogs, webinars, social posts and systemic advocacy work together make our organisation truly representative of and responsive to our community.

We love doing what we do, but it’s always nice to be recognised.

Today we received a wonderful email from the founder of Feedspot acknowledging us as a panelist (https://www.pda.org.au/blog/) in the Top 35 Australian Disability Blogs on the web (https://bloggers.feedspot.com/australian_disability_blogs/).

As an organisation with considerably less staff and financial resources than others on the list, we are incredibly grateful for this accolade and thank all of you who read and enjoy our blogs and posts.

A big thank you too, to our blog contributors who share their experiences and advice.

If you have something to share as a blog, or if you have a topic that you’d like us to cover, please send us an email to promotion@pda.org.au, leave us a comment or send us a message.

Together let’s build and support our community.

Let’s make healthcare fair and accessible for all Australians

On Tuesday 5th August at 6pm AEST, PDA will be hosting an important webinar around “fair and equitable healthcare”.

With excitement, we can announce the first of our guest speakers who will contribute to the conversation, sharing their knowledge, experiences and expertise around what is and isn’t working in Australia’s healthcare and medical systems for people living with disability.

Dr Dinesh Palipana OAM is a frontline medical professional, working as a principal medical officer in the emergency department at the Gold Coast University Hospital. His understanding of the medical system, its resources, capabilities, successes, challenges and shortfalls will provide a thorough overview of what needs to be addressed to improve services to people with disability.

The inimitable Carol Taylor is also on our speaking panel. With a background in law, and as the world’s first quadriplegic fashion designer of adaptive fashion and inclusive design, she is already positioned as a strong disability advocate working towards positive change for Australia’s disability community. However, recent issues around her own health have amplified her passion for making things right in a healthcare system that needs to address accessibility and patient-centred care for people with disability.

Another of our speakers that we are proud to announce is Dr Yi Yang, a Research Fellow with the University of Melbourne. Well respected and known for her research on health inequalities faced by people with disability, she is interested in quantifying inequalities in the National Disability Insurance Scheme (NDIS) and assessing the potential impact of policy changes in reducing these inequalities. As an epidemiologist, Yi has also led studies examining cancer inequalities among people with disability.

We are so incredibly grateful to have these three accomplished individuals as panelists at this upcoming webinar and thank them for agreeing to be involved.

We have several other speakers that we are hoping to confirm shortly. Make sure that you register for the webinar and then keep an eye on our socials for any updates.

To register go to:

https://us02web.zoom.us/webinar/register/WN_6zzLprNATDeWu1GD8ARb5A?os=ipad#/registration

On registering, we also invite you to share any questions that you would like to ask our speakers. You can choose to remain anonymous in asking these questions.

The opportunity to ask questions will also be made available during the webinar. However, please be mindful that these questions will be answered dependent on time constraints.

We look forward to you joining us for this incredibly important discussion and your helping to explore what is and isn’t working in the provision of healthcare for people living with disability in our country.

Share your PDA memories

With Physical Disability Australia – PDA celebrating its 30th birthday this coming December, we’re putting together a collection of memories and would love you to be involved.

Whether you were a foundation member in 1995, or have joined us along the way, we’d love to hear your PDA stories, receive your photos and learn more about our history and how we’ve grown to be a prominent voice in Australia’s disability landscape.

To share your memories, please email natasha.nobay@pda.org.au.

If you’d prefer your contribution to remain anonymous, please include this in the email.

Keep an eye out on our socials as we move towards our 30th. We’ll be sharing some interesting PDA facts along the way.

Sign up for free PDA membership today

Whether you discovered Physical Disability Australia’s socials, heard about us from a friend or family member, or found us online, why not take advantage of our free membership and sign up to be part of a wonderful community of people who truly understand what it means to live with a physical disability?

There are a lot of benefits in becoming a PDA member.

With physical disability making up a huge *76.8% of Australia’s reported 5.5 million disabled, PDA represents the vast majority of our country’s disability community – over 4.2 million in fact.

As well as Australians living with physical disability, we also welcome their families, friends, carers, support workers, providers and anyone with a supportive interest as PDA members.

We’ve been around since 1995 and are one of a very small handful of Australian disability organisations that actually has members and board representation in every Australian state and territory.

This gives us a national footprint and allows PDA to have its finger firmly on the pulse of disability in our country.

It is through this representation that our strong voice is heard and that we are included in Australia’s disability conversation.

As an organisation run by people with physical disability for people with physical disability, PDA also truly understands and stands for the needs, rights and consideration of its members.

We put disability rights at the forefront of all that we do.

So, if you haven’t signed up for FREE PDA MEMBERSHIP yet, what’s stopping you?

Simply click across to our signup page

pda.org.au/membership/

Join today.

You’ll be glad that you did.

*https://www.abs.gov.au/statistics/health/disability/disability-ageing-and-carers-australia-summary-findings/latest-release

CEO Update – June 2025

 Easy Read version of this CEO Update is available at

https://www.pda.org.au/wp-content/uploads/2025/06/PDA-Member-Update-Easy-Read-Version-June-2025.docx


Hello Members,

There have been several developments since my previous update. The Labor government won with a surprising, decisive majority. The Ministry has undergone a reorganisation, with new Ministers appointed. The National Disability Insurance Scheme (NDIS) is now part of the newly formed Government department of Health, Disability, and Ageing. The systemic advocacy sector strongly called for a Minister for Disability in line with the recommendation from the Disability Royal Commission, but I am not sure we were expecting the outcome of ‘Disability’ becoming a part of such a large department nor for the Minister for Disability to have such an extensive portfolio. It is important to note that although Mark Butler is the Senior Minister within the new portfolio, the NDIS will effectively be the responsibility of Jenny McAllister within the new portfolio/s. I have written letters of introduction to both Ministers.

About Mark Butler

Mark Butler is a senior Labor MP who has held many different government roles since entering parliament in 2007. He has worked on issues including mental health, ageing, housing and climate change. He is now responsible for both the health and disability portfolios.

Before politics, Mark worked with the United Workers Union, supporting people in low-paid jobs. He has a long interest in social policy and has written about ageing and the environment.

About Jenny McAllister

Jenny McAllister has been a Senator for New South Wales since 2015. She was recently appointed Minister for the NDIS, following on from her roles as Minister for Emergency Management and Minister for Cities.

Her background is in public policy and infrastructure, and she has worked in both government and private organisations. Jenny also co-founded the Labor Environmental Activist Network and has long focused on social justice and inclusion.

NDIS Reform

There has been much activity around the NDIS Reform initiatives and what this will mean for people with disabilities.  In my role, I attend meetings, forums, and working groups with DRO representatives, NDIS participant representatives, and NDIS staff to discuss, debate, and share information on these reforms. Outcomes may not always align with agreements.

Let me give you my take from my perspective on what is currently happening:

Funding Period Rule Changes

New NDIS participants and those with reassessed plans will now see new funding periods in their plans. 

https://www.ndis.gov.au/news/10728-message-ceo-about-supporting-you-manage-your-ndis-funding

This has confused many. To find out how these changes may impact you, click on the following link:

New NDIS Funding Periods have Started: What You Need to Know – Every Australian Counts

If you read the article from Every Australian Counts (EAC), you can see that there are many concerns around the implementation of funding periods.  EAC has highlighted the issues and concerns far better than I could, but here’s what I found interesting (particularly around the NDIS statement where it indicates that ‘funding periods will usually be set at 3-months.’)  Firstly, the statement when initially released by the NDIS indicated that new plans or reassessed plans would be set at a default 3-month funds release period, unless participants were at elevated risk. The revised statement has softened this to ‘usually set at 3-months.’ 

Just a little more context around this decision. Plans renew annually and before May 19 and, except for certain supports like car and house modifications, funds are allocated for 12 months. The maximum period for releasing funds is 12 months. This should not require modification for most participants as they are not at high-risk, have no history of over-spending funds or running out of funds, nor do they have any history of misusing funds.  So, what I am alluding to here is that the 3-month funding period is an NDIS decision and their decision alone.

Annual Pricing Review

The NDIS has just released its annual pricing review – Annual pricing review | NDIS

You can read more here about what this means for participants – Tightening the Belt:

The impact on participants is still unclear, with wage increases for support workers and level 1 support coordination in some States, but with reduced pricing limits on various therapy supports. 

What I can say as an NDIS self-managed participant is that, from my experience when engaging therapy supports, if I didn’t state I was an NDIS participant, I was quoted one fee and if I did state that I was an NDIS participant I was quoted, again in my experience, a higher fee.  This may not be the same experience as others. In one area of support costs will rise but, in another, they will decrease. Is this equivalent to robbing Peter to pay Paul?

Other Election Information

Ali France won the North Brisbane seat of Dickson, replacing Peter Dutton. Ms France is a woman who identifies as living with a physical disability as an amputee. I have written a letter of congratulations and introduction to Ms France.


Policy/Project Officer Recruitment

We have received several exceptional applications from individuals with lived experiences of disability for the new PDA position, which has been very encouraging. 

The skills, experience and knowledge displayed by these candidates relating to the role has been exceptional. We are currently in the process of interviewing, and we hope to make our hiring decision over the coming weeks. Please stay tuned for further updates.


PDA Member Survey

On June 11th we emailed out a survey to our members.  The purpose of this survey is to provide guidance to PDA on areas that our community would like us to focus on over the next 12 months and beyond. It also provides us with a valuable insight into issues and concerns that our members are currently experiencing. If you did not receive the survey and would like to be involved in this feedback opportunity, please contact Natasha Nobay – natasha.nobay@pda.org.au and a survey link will be forwarded on to you.  

Thank you to those of you who have already responded.  If you have not yet had the chance to complete the survey, please could I encourage you to do so as your input is invaluable.


New PDA Board Members

We have three PDA vacant Board Member positions:

• WA Associate Director

• NT Director

• NT Associate Director

These roles provide a wonderful opportunity to become part of a hardworking, fun team that works for the benefit of all Australians living with physical disability.

So, what is involved?

We are looking for someone with lived experience of physical disability who:

• is interested in improving the inclusion and participation of people with a physical disability in all aspects of life.

• will actively participate in the systemic advocacy work undertaken by PDA.

• will encourage and promote PDA membership and involvement to people with physical disability in your state/Territory.

• will assist in spreading the word by sharing PDA posts on social media pages and encouraging other members to do the same.

• will work with your State/Territory Board Members to identify local issues for PDA to act on.

• will attend PDA Board of Directors’ meetings by Zoom videoconference once every 2 months and in person if and when required.

If this sounds like something you’d like to be part of or you’d like to hear more, please email me – jeremy.muir@pda.org.au.


Want To Stay Informed?

Remember you can keep up-to-date with all that is happening in the disability sector by subscribing to PDA’s social media channels, such as PDA’s Facebook Discussion Page) which provides valuable disability-related information and allows you to provide us with feedback on issues of importance. 

For information on accessing PDA’s other social media platforms, please visit https://www.pda.org.au/2025/01/08/stay-up-to-date-on-issues-affecting-you/

I also encourage you to regularly visit PDA’s website’s blog page. This page showcases blogs written by our Board Members.  Our Tasmanian representative Tammy Milne recently had an excellent blog published, outlining the machinations of requiring support workers. 

We are always interested in hearing your ideas for Blogs. If you have an idea for a blog, please feel free to contact Natasha Nobay to discuss – natasha.nobay@pda.org.au.


Congratulations to our President, Sharon Boyce.

PDA’S President and QLD Director, Dr Sharon Boyce, was recently recognised at the 2025 Toowoomba Business Disability Awards.

As winner of the Education & Training Award, this accolade celebrates excellence in education and/or training within the Toowoomba and Darling Downs regions.

A most deserving recipient.


Conclusion

I will finish my second update now. 

However, If you have any questions or concerns, or you simply want to reach out and say “hi”, please do not hesitate to contact me – jeremy.muir@pda.org.au.


Together let’s make our voices heard.

Jeremy Muir

CEO

Physical Disability Australia (PDA)

PDA signs on to detailed joint position statement offering recommendations to guide the Australian Government’s transition to a new human right-based needs assessment model

June 17, 2025

The National Disability Insurance Scheme (NDIS) Review recommended shifting the basis for setting a budget from individual support items to a “whole of person” level, supported by new needs assessment processes. This year, the National Disability Insurance Agency (NDIA) is working to design and test a new way of gathering information about the support people with disability need and to set their NDIS budgets.

Disability Representative Organisations have worked together to develop a detailed joint position statement offering recommendations to guide the Australian Government’s transition to a new human right-based needs assessment model.

This position statement includes:

Our recommendations are grounded in the Convention on the Rights of Persons with Disabilities (CRPD), recent analysis from the Independent Review of the NDIS (2023), and other relevant evidence. We strongly urge the Department of Social Services (DSS), the NDIA, and implementation partners to embed human rights, co-design, and trusted relationships at the centre of this reform.

We acknowledged the leadership of Women with Disability Australia (WWDA) in the development of this position statement, and it is based on the principles outlined in WWDA’s position statement

  • * Key principles for a human rights-based model of needs assessment; 
  • * Overarching principles for design and implementation; 
  • * Considerations for a three-part needs assessment process; and
  • * Recommendations for implementation.

    The following organisations have contributed to and/or expressed their support for this joint position statement:
  • * Australian Autism Alliance
  • * Australian Federation of Disability Organisations
  • * Children and Young People with Disability Australia
  • * Community Mental Health Australia
  • * Disability Advocacy Network Australia
  • * Down Syndrome Australia
  • * First Peoples Disability Network Australia
  • * Inclusion Australia
  • * National Ethnic Disability Alliance
  • * National Mental Health Consumer Alliance
  • * People with Disability Australia
  • * Physical Disability Australia
  • * Women With Disabilities Australia

Read the full Position Statement in PDF

https://www.pda.org.au/wp-content/uploads/2025/06/Human-Rights-based-Assessment-Model-Joint-DRO-Position-Statement-250617.pdf

or Word

https://www.pda.org.au/wp-content/uploads/2025/06/Human-Rights-based-Assessment-Model-Joint-DRO-Position-Statement-250617-FINAL.docx