The Stick that Changed my Life

Written by Melanie Hawkes, PDA’s WA Director

The elevator doors closed behind me, but it didn’t move. 

Uh-oh, I thought. Now what? 

In the 14 years I’d been a wheelchair user, I’d never been in a lift on my own before. But here I was, in my first semester of a Japanese Studies degree at Murdoch University, and needing to get to the second floor for a lecture on cross-cultural psychology. It was a very small lift in an old building at the opposite end to the lecture room. My arms weren’t long or straight enough to press the button to go up. I was stuck. For about an hour. And missed my lecture. 

This was 1997, before everyone had a mobile phone, so I couldn’t even call for help. Eventually someone came to use the lift and found me – what a surprise they got. I was just relieved to be out of there. Lucky I don’t get claustrophobic. 

That afternoon when my mum came to pick me up, I told her what had happened. “You need to carry a stick,” she said. 

Being the practical person Mum is, we stopped at Bunnings on the way home. She bought me a wooden dowel, a pack of rubber stoppers that fit the end, and some plastic tubing. When we got home, she put a rubber stopper on one end of the dowel, cut some tubing and slid it over the other end, and gave it to me. Voila: my stick was born.

I put the plastic tubing end into my mouth and tested my stick on a light switch. Oh my goodness, it worked! For the first time in my 17 years, I could do things I’d never thought possible, like turn a light on or off. This would be the start of the independent life I’d craved. Thanks Mum!

But what else could I use it for? I looked around my room. If I hooked the little rubber stopper on my pencil tin on my desk, I – oh yes – I could bring it closer or push it out of my way. I learnt that I could also scratch my head, type on my computer and open and close doors. While I was living with my parents and three younger brothers, it hadn’t occurred to me that I’d need to be capable of doing these things for myself if I wanted to move out of home and not need 24-hour care. 

The only challenge with my new stick was how to carry it? I’d need it at uni to press lift buttons, so I wouldn’t get stuck ever again. My stick might be small in diameter but was about a metre long. It was too big to carry on my tray. 

My dad got to work in his shed. He was a boilermaker and had lots of tools at home. It didn’t take him long to develop a stick holder. Made from aluminium tubing, he blocked the bottom, and attached a bracket to screw to my leg rest. I now had a stick and could carry it everywhere I went. Thanks Dad!

I developed an independent spirit from that day. My parents had always encouraged me to do as much as I could for myself, while accepting help for the things I couldn’t. But with this stick, I could demonstrate it practically to others. I’m certain it helped me be accepted as an exchange student to Japan in 1999 for 10 months. I wasn’t taking no for an answer and was determined to fulfil my university studies degree by studying at a Japanese university. 

The problem with wooden sticks is they broke often. And when overseas studying, it became an issue. We found a hardware / garden centre that had my stick replaced quickly, every time I broke it.

Once back in Perth, I graduated and had to find a job. I was invited to be a guest speaker at disability awareness training sessions for Main Roads staff. I always started my talk by showing my stick and asking what people thought it helps me with. 

After one presentation, a man at the back put his hand up to ask me a question. “Why do you use a wooden stick? Have you ever used fibreglass sticks?” 

I shook my head. During the morning tea break we chatted further. “We use them as flag poles for the orange flags at children’s school crossings,” he explained. “We often get them back a bit worn out. I could deliver some to you next week.”

Sure enough, the following week he delivered four to my door. They were slightly slimmer than the wooden ones I was used to, and a little heavier. I had to build my jaw muscles to be able to use it effectively, since I use it in my mouth for most things. It took me a while to get used to it, but I haven’t broken a stick since. I’m still using the original ones – for over 20 years now. 

In 2015 I received my third assistance dog, Upton. He found my stick difficult to pick up off the floor. He couldn’t get his front teeth underneath it. “What if we added an elastic band?” his trainer asked me. 

With the band in place, Upton learnt to target the band to pick it up every time. But I quickly found another use for it: tagging my Smartrider card on and off buses and trains. I always carried my card in a plastic pouch with a pipe cleaner handle, and dangled it from the end of my stick. But on buses, the tag-on machine is above my head height, so the pouch always slid and hit me in the face. The elastic band stops it sliding, and since then I haven’t had to ask other passengers to tag on for me. Thanks Upton!

In 2023 I was browsing social media when I saw a competition called the Simply Open Awards. They were looking for simple solutions and innovations that can help people with disabilities. I made a five-minute video about my stick. I explained why I needed it, how it was made, and demonstrated several uses around my home, from pressing light switches to sliding doors open and closed. I even showed how I can heat my leftover dinner in the microwave with the short stick I have. 

One evening I received an email saying I was a prize-winner (a cash prize of £750), and my video had been sent to the judges at the Discovery Awards. The next night I received an email saying my video was voted the top two innovations IN THE WORLD, and my prize was a trip to Vienna to attend the Zero Project Conference in February 2024! All because of the video I made about my stick. The stick I carry everywhere because I was stuck in a lift and couldn’t reach the button. The same stick that has enabled me to catch public transport to work independently, and not need 24-hour care. It really did change my life.

PDA’s 2025 Annual General Meeting – Official Notice and Invitation to Members

On Saturday 6th December 2025, PDA will be holding its Annual General Meeting and encourages Members to attend via Zoom.

  • 2pm NSW/VIC/TAS/ACT
  • 1:30pm SA
  • 1pm QLD
  • 12:30pm NT
  • 11am WA

Hear what we’ve been up to in 2025 and what our plans are moving forwards.

PDA’s Ambassador, Dr Dinesh Palipana OAM, will be joining us and sharing his thoughts around issues affecting our community now and into 2026.

Our Annual General Meeting will be a great chance for Members to be an active part of the PDA community and help our organisation move in to its 31st year.

Register your attendance

To register to attend our AGM via Zoom, please go to:

https://us02web.zoom.us/meeting/register/JAuZAeuaRJi9-31_FUlozA

If you don’t have a Zoom account, signing up is free, quick and easy.  Go to https://zoom.us/signup and create an account. 

Please make sure to visit https://us02web.zoom.us/meeting/register/JAuZAeuaRJi9-31_FUlozA to register for the AGM once you have created a Zoom account. 

If you experience problems or have any questions, please email us at promotion@pda.org.au or call 1800 PDA ORG (1800 732 674).

After registering, you will receive a confirmation email containing information about joining the meeting.

Meeting documents will be circulated ahead of the AGM.

PDA Board Nominations

At this year’s AGM, Nick Schumi is reaching the end of his current 3-year term as SA Director, and there are vacancies for the roles of Director (NT), Associate Director (NT) and Associate Director (WA).

Full members wishing to nominate for any of these roles need to complete and return the ‘Nomination Form’ by close of business on Friday 28 November. 

Similarly, if you wish to appoint a proxy to vote on your behalf, you need to complete and return the ‘Appointment of Proxy Form by close of business on Friday 28 November. 

We  look forward to you joining us at our AGM and saying “hi”.

If you’re a PDA Member, make sure that you register for our upcoming AGM

MEMBER ONLY EVENT

On Saturday 6th December 2025, PDA will be holding its Annual General Meeting and encourages Members to attend via Zoom.

2pm NSW/VIC/TAS/ACT
1:30pm SA
1pm QLD
12:30pm NT
11am WA

Hear what we’ve been up to in 2025 and what our plans are moving forwards.

Our Annual General Meeting will be a great chance for Members to be an active part of the PDA community and help our organisation move in to its 31st year.

To register to attend our AGM via Zoom, please go to:

https://us02web.zoom.us/meeting/register/JAuZAeuaRJi9-31_FUlozA

If you don’t have a Zoom account, signing up is free, quick and easy. Go to https://zoom.us/signup and create an account.

Please make sure to visit https://us02web.zoom.us/meeting/register/JAuZAeuaRJi9-31_FUlozA to register for the AGM once you have created a Zoom account.

If you experience problems or have any questions, please email us at promotion@pda.org.au or call 1800 PDA ORG (1800 732 674).

After registering, you will receive a confirmation email containing information about joining the meeting.

Meeting documents will be circulated ahead of the AGM.

We really look forward to you joining us and saying “hi”.

Give your feedback on the NDIS Practice Standards

The NDIS Quality and Safeguards Commission wants your feedback is on the NDIS Practice Standards.

The NDIS Practice Standards are the mandatory quality and safety benchmarks that registered NDIS providers must meet when delivering services to NDIS participants.

Covering areas like participant rights, provider governance, and specific types of support (including behavior support and early childhood services), these standards are designed to ensure participants receive high-quality, safe, and person-centered support that respects their choices and dignity.

Public consultation is now open and NDIS participants, families, providers and the wider community are invited to share their feedback on the draft redesigned NDIS Practice Standards.

Consultation is open until 14 November 2025.

So how can you get involved?

You can:

More information on the public consultation process is available at: https://www.ndiscommission.gov.au/about-us/ndis-regulatory-reform/ndis-practice-standards-reform

Making invisible disabilities visible

🌻 This week marks Invisible Disabilities Week.🌻

Invisible disabilities can include cognitive, neurological, sensory, mental health and chronic conditions, and these may not be immediately apparent.

With around 85% of people living with a disability having one that isn’t necessarily visible, it’s important to show kindness, understanding and support without judgment and assumptions.

The sunflower lanyard helps to identify those who may need assistance, additional consideration and simply enables them to be seen and supported.

Together let’s build a more inclusive community.

What is changing in the NDIS’ Pricing Arrangements and Pricing Limits update?

The NDIS National Disability Insurance Scheme has updated its Pricing Arrangements and Pricing Limits document.

The changes will take place from 24 November 2025.

Based on feedback, they’re sharing the updates now. This means you and your family can plan how you want to use your funding.

What’s changing?

  • * Art and Music Therapy: the price limit will change.
  • * COVID: how you claim for COVID items will change.
  • * Location categories: the Modified Monash Model (MMM) has been updated.
  • * Specialist Disability Accommodation: the calculator has been updated.
  • * Assistive Technology, Home Modifications and Consumables: changes have been made to keep them in line with the NDIS Supports List.

What happens next?

  • * Participants don’t need to do anything.
  • * Providers must discuss any proposed changes to existing service agreements with the participant.

For more information, visit the NDIS’ pricing arrangements page – https://www.ndis.gov.au/providers/pricing-arrangements

Increasing Cervical Screening for People with Disability.

The Australian Government Department of Health, Disability and Ageing is running a number of webinars over the next month or so around increasing cervical cancer screening for PWD:

  • * Tuesday 21 October – 12:30–1:30 pm
  • * Wednesday 30 October – 5:00–6:00 pm
  • * Monday 3 November – 8:00-9:00 am
  • * Tuesday 25 November – 1:00–2:00 pm

The webinars are designed so you only have to join one session. Each session will cover the same content, so there is no need to attend multiple sessions unless you want to!

About the Event

The organisers will talk about the challenges people with disability might face when getting cervical screening tests and share practical ways to make the process easier and more supportive.

You’ll hear from Professor Deborah Bateson from the University of Sydney, who is an expert in cervical screening. She’s joined by Associate Professor Mary-Ann O’Donovan from the Centre for Disability Studies, and a team of Screening Advocates who have lived experience with disability.

This session is especially for people with disability, their families, disability support workers, volunteers, and healthcare professionals. Everyone is welcome!

Things that will be covered in the webinar:

  • * What cervical screening testing is, and why it matters.
  • * How to support people with disability to get screened.
  • * Tips to make the experience easier and more comfortable.
  • * Different options available, like doing the test yourself (self-collection).

The organisers want to make sure this event works for you.
When you sign up, please let them know if there’s anything they can do to support your needs.

To register, either go to:

The event will include:

  • * Auslan interpreters
  • * Captions (subtitles)
  • * A short break in the middle
  • * Plain English wherever possible
  • * Brief visual descriptions to help with understanding

The sessions will also be recorded, so you can watch later if needed.

Celebrating and thanking the Carers in our community

As we move towards the end of National Carers Week (October 12th to 18th 2025), we invite you to join us in celebrating the special people in our lives who give their time, energy and love in caring for others.

Over 3 million Australians are carers – including parents, partners, children, friends and neighbours – assisting others in their everyday needs.

These incredible individuals are often the quiet heroes amongst us and during this special week (and always) we would like to say “thank you”.

If you have a special person who makes your life easier, who you’d like to recognise and celebrate, we invite you to do so here.

#nationalcarersweek #nationalcarersweek2025

Our “The Impact of Disability on Mental Health” Webinar is now available to view on YouTube

Earlier this month, PDA presented a webinar on “The Impact of Disability on Mental Health”.

The webinar took place on Wednesday October 1st 2025 and marked the beginning of Mental Health Awareness Month.

Highlighting the intersectionality between disability and mental health issues, this presentation also provided advice and support and brought together Australians living with disability and their support networks to better understand and combat mental health challenges.

We are very excited to now share that this recording has now gone up on our YouTube channel:

www.youtube.com/watch?v=1FcSESU48ks&t=4086s

The line up of speakers contributed to the conversation, sharing their respective knowledge, experiences and expertise and addressing areas of concern.

Speakers:

  • * Chithrani Palipana – Rehabilitation Counsellor/Disability Advocate
  • * Kerry Hawkins – CEO, Community Mental Health Australia (CMHA)
  • * Zoe Aitken – Senior Research Fellow at the University of Melbourne
  • * Liel Bridgford – Proud disabled Psychologist, Writer and Educator

Hosted by PDA CEO Jeremy Muir, the webinar tackled issues surrounding the impact of disability on mental health, featuring lived experiences, statistical knowledge, and professional advice and support for Australia’s disability community.

We hope that you find the information and discussion around mental health issues for people with disability in this webinar useful, informative and interesting.

We will shortly announce our next webinar topic and encourage you to keep an eye out on our socials.

PDA Members will be notified when registration opens. If you’re not already a member, we encourage you to sign up for free membership (pda.org.au/membership/) so that you are kept in the loop.

Mental Health Awareness Month

October is Australia’s Mental Health Month, a dedicated time to raise awareness about mental health and remind us of the importance of prioritising mental health – especially during moments of difficulty or high stress.

With everyone dealing with the challenges of life, it’s sometimes difficult for us to allow time to focus on our own wellbeing and to put ourselves first.

Use today to give yourself a break, to just breathe and to give self-care and support to your mental health.

If you, or someone near you, is needing help today or any day, please speak with a healthcare professional, family member or friend or contact

because we’re all worth it.

We also invite you to join us TONIGHT (at 6pm AEST) at our free webinar highlighting the connection between physical disability and mental health challenges, and providing information and support.

To register, please go to:

https://us02web.zoom.us/webinar/register/WN_Rly2wyx3RaKD53KiY3CL0Q?